Social Media

Social media has turned into a powerful tool to connect people across the world right from their very own home. There are many support groups for CHD in general, for specific defects, and even groups based on where you live. Plug in to the heart community and connect with others who are going through similar experiences.

General support groups on Facebook:

• CHD Community
• Congenital Heart Defects
• Children with Congenital Heart Defects
• CHD Parent Tube Weaning Support Group
• Sisters by Heart
• Growing Up Zipper: Tweens, Teens, and Young Adults with CHD
• Heart Moms N Dads with ADULT CHD “Kids”

If you live in the Nashville Area or receive care at Monroe Carell Jr. Children’s Hospital at Vanderbilt you can request to join the Nashville Area Heart Parents group. Joining a group can be a great place to ask questions, chat with families in similar circumstances, and feel less isolated.

Many other cities near large cardiac hospitals have support groups on Facebook moderated by other heart parents. Here are a few:

• Nashville Area Heart Parents
• Boston’s Special Hearts – a CHD family
• Families of Boston Children’s Hospital
• CHOP Families Helping Families
• Hearts of LeBonheur
• Chattanooga Area CHD Families

Parent to Parent

Parent to Parent – a state program that provides support, information, services, and training to families with special health care needs. Their Parent Match program can match you with another family that has a similar special health care need for support.

• Tennessee Parent 2 Parent