Sydney McFall   |   December 31, 2019

20 Heart Warriors in 20 Years


Diamond is 17 years old. She has Hypoplastic Left Heart Syndrome (HLHS) and has had multiple open heart surgeries, medical interventions and lung repairs. Diamond wants to be a nurse, specifically working with cardiac issues, because she understands what patients are going through. She wants to share her story to give hope and care to those like her. In 20 years, her mother would like to see a higher surgery survival rate and more preventative measures in the CHD world. 

Dylan is 15 years old. He has Pulmonary Vein Stenosis, Pulmonary Hypertension, PDA, and a bicuspid aortic valve. He’s had heart surgery and several heart catheterizations. In 20 years, Dylan does not want any other child to not be able to grow up because of PVS. 

Stephanie is 34 years old. She has HLHS and has been through multiple heart surgeries and medical interventions.  She is an author and advocate. In 20 years, she wants there to be minimally invasive heart transplants with a heart made from peoples’ own DNA. 

Owen is 1 year old and has VSD, ASD, PVS, and a bicuspid aortic valve. He’s had many medical interventions including an open heart surgery. His mom wants him to feel as carefree and hopeful for his future as any other young adult in 20 years. She doesn’t want any parent to experience the worry and despair that a CHD diagnosis brings. In 20 years, his mother wants Project Heart to be able to grow a human heart and fully cure CHD forever. 

Trace is 5 years old and was born with Hypoplastic Right Heart Syndrome (HRHS). He’s has many heart surgeries and interventions. Trace wants to be just like his daddy when he grows up. In 20 years, Trace’s parents want to see research advances capable of growing Trace his own heart. His mom wants to see a cure rather than a bandaid. 

Natalie is 3 years old. She’s had heart caths, a surgery and is awaiting her second. She loves Doc McStuffins and her doctors but also loves princesses. She wants to wear a tiara in her office. In 20 years, her mom wants to see her find love, be happy and healthy, and graduate from college. She wants a cure for HRHS. 

Kate is 25 and has Ebstein’s Anomaly. She’s had many operations and interventions. She wants to be a nurse practitioner, caring for adults with CHD to give them a brighter future. In 20 years, she hopes there are less invasive procedures for CHD so that kids can experience the childhood they deserve. 

Decker is 5 years old with ASD, Pulmonary Stenosis, and Aortic Stenosis. Two heart surgeries later he loves racing his ATV and wants to do it forever. In 20 years, his parents hope families have better options to treat CHDs. They want less invasive interventions and better outcomes! 

Grace is an 11 year old HLHS and stroke survivor. After 3 open heart and other surgeries, she wants to be a doctor. In 20 years, her parents want there to be a heart grown specifically for her so that she can live a healthy and full life. 

James is 38 years old with Dextrocardia. He wants to be the first CHD survivor to complete the explorer’s grand slam in mountain climbing. He also wants to raise $1,000,000 for CHD research! In 20 years, he wants CHD research to be growing pediatric hearts. 

Sophie is 7 and has HLHS. She’s had multiple surgeries and now has a heart transplant. She wants to be a MRI tech like her mom or a nurse. In 20 years, her parents hope for a cure for CHD as well as less invasive procedures. 

Joey is 10 years old with Tetralogy of Fallot (TOF). He’s had heart repairs and a surgery. He wants to help people through being a police officer. In 20 years his mom wants to see advancements in CHD research for CHD patient’s future. 

Aiden is 10 and has Double Inlet Left Ventricle. He’s had two open heart surgeries. He wants to be a builder because he wants society to have more homes. In 20 years, his mom wants there to be better interventions so length and quality of life improves. 

Callie is 3 with Truncus Arteriosus. She’s had many surgeries and inventions. In 20 years, she wants to see a heart grown because she will most likely eventually need a transplant. 

Emory is 8 and has Anomalous Aortic Origin of the Coronary Artery, ASD, and VSD. After having an open heart surgery at 5 years old, he wants a cure for CHD so that no other children or adults have to go through what he has. In 20 years, he wants everyone with CHD to be able to thrive and live a normal life. 

Sydney is 20 and has HRHS with Tricuspid and Pulmonary Atresia. He’s had many surgeries and caths. He wants his future family to have a healthy, normal life without the surgeries and doctor visits that come with CHD. In 20 years, he hopes CHD research gets to the point of a 100% survival rate. 

Gabrielle is 34 with HLHS. She’s had numerous heart caths, surgeries, and interventions. She wants to see her daughter grow up and graduate from college. In 20 years, she’ll be 54. She hopes the causation of CHD is discovered by then and how to prevent it from occurring. So, she wants a cure and a prevention. 

Jeremiah is 10 with Double Outlet Right Ventricle, Total Anomalous Pulmonary Venous Return, and Pulmonary Atresia. He’s had four surgeries and many heart caths. He loves soccer and wants to keep excelling. In 20 years, his mom wants to see more awareness and a cure for CHD. 

Eliza is 2 years old with TOF, Pulmonary Atresia, large VSD, and Mapcas. She’s been through many surgeries and interventions. In 20 years, her mom wants CHD to be well known and find a cure for it. 

Matthew is 9 years old and has d-Transposition of the Great Arteries (TGA). He’s had an open heart surgeries and a cath. He wants to be a heart doctor to help kids like him! In 20 years, his mom wants many things for CHD research but most of all she wants to see CHD gone.

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