Sydney McFall   |   September 27, 2019

Project Heart and the Adult Congenital Heart Association (ACHA) are teaming up for CHD research!  Project Heart and ACHA have partnered to fund three fellows doing research that will further …

Sydney McFall   |   September 2, 2019

This post is written and originally posted on Heart Savvy Momma. Heart Savvy Momma was created by Erica Thayer, co-founder of Project Heart.

Sydney McFall   |   August 28, 2019

HRHS Diagnosis  Matt is a HRHS survivor. More specifically, pulmonary ventricular and aortic atresia plus dextrocardia. In other words, structures on the right side of his heart do not function …

Sydney McFall   |   August 14, 2019

HLHS Survivor Meghan Roswick was born in the hospital, left as a seemingly healthy baby, and returned back 7 days later due to odd breathing. The doctors “didn’t like the …

Sydney McFall   |   July 24, 2019

A Binding BT Shunt Winne, Trace and Elijah are all completely different. They are different ages, live in different places and lead completely different lives. However, they share a connecting …

Sydney McFall   |   June 17, 2019

Episode I: Something Wrong When Dylan Van Dyke was born, doctors told his mother something was wrong with his heart. He was born with Pulmonary Vein Stenosis (PVS) a critical …

Sydney McFall   |   March 26, 2019

Late diagnosis of HLHS Melanie and Damon took their 14-day old daughter, Diamond, to a routine two-week checkup. It was there in a quiet patient room that the doctor noticed …

Sydney McFall   |   March 18, 2019

Life On Autopilot Scarlett Rayne was born in 2017 with Tetralogy of Fallot (TOF). The events that led up to the day she was born her mother, Rebecca, will forever …

Sydney McFall   |   February 17, 2019

Photo credit: Suha Dabit, World of Broken Hearts Scars Don’t Define Kristen was born on May 11, 1995 with the congenital heart defect (CHD) Pulmonary Atresia and Intact Ventricular Septum …

Sydney McFall   |   January 31, 2019

Photo Credit: Allyson Gray Photography 10 Weeks Late It took ten weeks and her mother’s persistence for Lauren Bednarz to be diagnosed with Tricuspid Atresia. Since her diagnosis in 1987, …

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