My name is Stephanie Romer and I am 30 years old. I was born and raised in Dayton, Ohio and born with a fun variety of congenital heart defects, summed …
Congenital heart defects… they happen to other people’s kids. Not mine. At least that’s what I thought. Before Olive’s diagnosis, I had never even heard of congenital heart defects. I …
This is Luke’s story written by his sweet momma, Jessica. Thank you Sems family for sharing your story with us! Starting with our 18 week ultrasound, we kept being told …
We never thought we could have kids and after 10 years of trying we had pretty much given up. I ended up getting very sick and had a near death …
Recently, an awesome post entitled “Why Fighting Congenital Heart Disease Matters” was published by Lexi Behrndt on her blog, Scribbles & Crumbs. You can read her full post here. Lexi …
Recently we’ve featured many stories about kid’s whose heart defects were diagnosed in utero. However, heart defects aren’t always detected before birth. This is Raleigh’s story told by his mother, …
This is Aiden’s story written by his wonderful mom, Ginger. Thank you Ginger for sharing a piece of Aiden’s CHD journey with us! I am a single mom and …
This is Witt’s story written by his father, Norm. Thank you Deane family for sharing this with us! Witt just hours after his transplant. He was not doing well and …
I came across a journal article today and couldn’t not write about it. It cuts right to the core of why we are so passionate about funding CHD research. The article …
We watch. We wait. We wonder if today will be the day. The day her heart needs more repairs. We know the day is coming where we will once again …
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