Tyler Thayer   |   October 31, 2016

My name is Stephanie Romer and I am 30 years old. I was born and raised in Dayton, Ohio and born with a fun variety of congenital heart defects, summed …

Tyler Thayer   |   September 14, 2016

Congenital heart defects… they happen to other people’s kids. Not mine. At least that’s what I thought. Before Olive’s diagnosis, I had never even heard of congenital heart defects. I …

Tyler Thayer   |   August 30, 2016

This is Luke’s story written by his sweet momma, Jessica. Thank you Sems family for sharing your story with us! Starting with our 18 week ultrasound, we kept being told …

Tyler Thayer   |   August 5, 2016

We never thought we could have kids and after 10 years of trying we had pretty much given up. I ended up getting very sick and had a near death …

Tyler Thayer   |   July 16, 2016

Recently, an awesome post entitled “Why Fighting Congenital Heart Disease Matters” was published by Lexi Behrndt on her blog, Scribbles & Crumbs. You can read her full post here. Lexi …

Tyler Thayer   |   June 2, 2016

Recently we’ve featured many stories about kid’s whose heart defects were diagnosed in utero. However, heart defects aren’t always detected before birth. This is Raleigh’s story told by his mother, …

Tyler Thayer   |   May 23, 2016

  This is Aiden’s story written by his wonderful mom, Ginger. Thank you Ginger for sharing a piece of Aiden’s CHD journey with us! I am a single mom and …

Tyler Thayer   |   May 6, 2016

This is Witt’s story written by his father, Norm. Thank you Deane family for sharing this with us! Witt just hours after his transplant. He was not doing well and …

Erica Thayer   |   May 1, 2016

I came across a journal article today and couldn’t not write about it. It cuts right to the core of why we are so passionate about funding CHD research. The article …

Tyler Thayer   |   April 26, 2016

We watch. We wait. We wonder if today will be the day. The day her heart needs more repairs. We know the day is coming where we will once again …

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