Erica Thayer   |   December 31, 2019

Diamond is 17 years old. She has Hypoplastic Left Heart Syndrome (HLHS) and has had multiple open heart surgeries, medical interventions and lung repairs. Diamond wants to be a nurse, …

Erica Thayer   |   December 20, 2019

Bonded By CHD Misty Sharpe is a CHD survivor and advocate that works with the Adult Congenital Heart Association (ACHA). She is passionate about ensuring adult CHD patients are not …

Erica Thayer   |   December 16, 2019

Fontan Survivor Jessica Rush is 36 years old. She is one of the oldest Fontan survivors and one of the oldest HLHS survivors. She’s also a daughter, a wife, and …

Erica Thayer   |   December 9, 2019

This post was written by Lisa Bocan. Lisa is mom to three beautiful children, one being heart angel Mila Rose. Read about Mila’s story through her mom’s eyes. It is …

Erica Thayer   |   December 2, 2019

Adult CHD Patient Parent Patty Hansen is the mom of Meghan Roswick, making her a CHD patient parent. Meghan is 28 years old, leading a beautifully adventurous life, and is …

Erica Thayer   |   November 25, 2019

Happy Thanksgiving! It’s almost Thanksgiving and we all know what means. Time to break out the stretchy pants! We eat until we’re as stuffed as the turkey and spend the …

Erica Thayer   |   November 22, 2019

What is it?  The Fontan procedure is most often performed on single ventricle heart defects. It is the third step in the three step Fontan series. It is normally done …

Erica Thayer   |   November 20, 2019

What is it?  The Glenn procedure is most often performed on single ventricle heart defects. It is the second step in the three step Fontan series. It is normally done …

Erica Thayer   |   November 18, 2019

What is it?  The Norwood procedure is most often performed on Hypoplastic Left Heart Syndrome patients and, in some cases, other single ventricle heart defects. It is usually the first …

wpengine   |   November 11, 2019

Lisa Hemming is a 33 year old CHD survivor and patient advocate. She has Tricuspid Atresia, TGA, ASD, VSD, and Coarctation of the Aorta. She has had four open heart …

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