Diamond is 17 years old. She has Hypoplastic Left Heart Syndrome (HLHS) and has had multiple open heart surgeries, medical interventions and lung repairs. Diamond wants to be a nurse, …
Bonded By CHD Misty Sharpe is a CHD survivor and advocate that works with the Adult Congenital Heart Association (ACHA). She is passionate about ensuring adult CHD patients are not …
Fontan Survivor Jessica Rush is 36 years old. She is one of the oldest Fontan survivors and one of the oldest HLHS survivors. She’s also a daughter, a wife, and …
This post was written by Lisa Bocan. Lisa is mom to three beautiful children, one being heart angel Mila Rose. Read about Mila’s story through her mom’s eyes. It is …
Adult CHD Patient Parent Patty Hansen is the mom of Meghan Roswick, making her a CHD patient parent. Meghan is 28 years old, leading a beautifully adventurous life, and is …
Happy Thanksgiving! It’s almost Thanksgiving and we all know what means. Time to break out the stretchy pants! We eat until we’re as stuffed as the turkey and spend the …
What is it? The Fontan procedure is most often performed on single ventricle heart defects. It is the third step in the three step Fontan series. It is normally done …
What is it? The Glenn procedure is most often performed on single ventricle heart defects. It is the second step in the three step Fontan series. It is normally done …
What is it? The Norwood procedure is most often performed on Hypoplastic Left Heart Syndrome patients and, in some cases, other single ventricle heart defects. It is usually the first …
Lisa Hemming is a 33 year old CHD survivor and patient advocate. She has Tricuspid Atresia, TGA, ASD, VSD, and Coarctation of the Aorta. She has had four open heart …
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